Getting involved


Getting involved

There is an opportunity for patients and families to get involved in this exciting project.

At the moment we are looking for NHS patients who have certain rare diseases, plus their families. Also patients with some cancers may take part.

If you have a rare disease or have recently been diagnosed with cancer, your hospital doctor and clinical care team will be happy to talk to you about the project.

For more information on what is involved, please see our Taking part and Find out more pages.