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East Genomics

Bringing together genomic medicine across the East Midlands and East of England

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Governance around supporting Patients and the Public

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What are stakeholder groups?
What are the aims of our stakeholder groups?
What are the approaches that will achieve stakeholder group aims?


What are stakeholder groups?
Companies, such as charities and health organisations, that liaise with the public and the NHS to improve services and provide more transparency for patients.


What are the aims of our stakeholder groups?
To improve awareness of, and access to, genomic medicine.


What are the approaches that will achieve stakeholder group aims?

    1. Oversight of genomic projects through national, regional and local committees
    2. Offering insight into new strategic ventures and lobbying
    3. Improved communications through outreach events, standard and social media
    4. Targeted support to potentially vulnerable or seldom heard from groups at high risk of disease such as south Asian women with breast cancer and African Caribbean men with prostate cancer
    5. Shared good practice and partnership working such as cancerPDX.com, ‘Make a person aware’ campaign and ‘Genes don’t care what you wear’ campaign.

If your governance question has not been answered in this section, please visit our Ask page and submit your question there. Our team of experts will seek to find an answer and reply to you within one month.

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Recent News

  • Are your NHS patients eligible for WGS? September 23, 2019
  • Update on 100,000 Genomes Project September 23, 2019
  • Creating genetic reports that can be understood by nonspecialists – help needed September 23, 2019
  • We celebrate as 100,000 genomes sequenced December 13, 2018
  • Government target to map 5 million genomes October 10, 2018

RSS Genetics News from the University of Cambridge

  • Q&A with Sharon Peacock, coronavirus variant hunter February 22, 2021
    The Conversation spoke to Professor Peacock about that day and what happened after. Q: When did you first get the idea to set up Cog-UK? And how was it formed? In late February 2020, it dawned on me that we were going to need genome sequencing capabilities across the UK for the novel coronavirus. It […]
  • Asymptomatic screening and genome sequencing help Cambridge understand spread of SARS-CoV-2 among its students January 11, 2021
    Initial results suggest that the screening programme, together with the University’s public health measures and responsible student behaviour, has helped limit the spread of the virus. Now, the team running the programme has joined up with researchers at the COVID-19 Genomics UK Consortium (COG-UK) to track how infections spread among the student population. They have shown how […]
  • Cambridge-led SARS-CoV-2 genomic surveillance consortium receives £12.2 million November 16, 2020
    The additional investment will enable COG-UK to grow and strengthen current genomic surveillance efforts spearheaded by the Wellcome Sanger Institute and the University of Cambridge, together with the four UK Public Health Agencies and other COG-UK partners, with the aim of increasing sequencing capacity across the national network and reducing turnaround time from patient sample […]

East of England NHS Genomic Medicine Centre

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