Documentation


Patient Information Sheets

Patient Information Sheet for parents of a child with a rare disease (Cambridge)

Patient Information Sheet for a Proband – young person 11 to 15 years (Cambridge)

Patient Information Sheet for a Proband – child aged 6 to 10 years (Cambridge)

Patient Information Sheet for a Proband – adult with a rare disease (Cambridge)

 

Consent Forms

Consent form for Proband (child patient) with a rare disease – for parent to sign (Cambridge)

Consent form for Proband (adult patient) with a rare disease or their adult relative (Cambridge)