Patient Choice Consent Framework
An appropriate discussion of a genomic test and the possible implications for a patient and their family members should take place according to the Consent and Confidentiality in Genomic Medicine guidelines.
To support this a new Patient Choice consent framework has been developed. Under this framework, a record of the discussion about genomic testing should be made when a test is ordered, and all patients undergoing testing will be offered the opportunity to participate in research.
Training for clinicians on the Patient Choice framework is available online:
Clinicians must complete this training prior to referring patients for Whole Genome Sequencing.
For all other genetic tests we recommended a record of discussion is retained within a patients record. Download our recommended record of discussion form here:
Download – Patient Choice – Record of Discussion Form